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Student receiving certificate from camp.

HDI Hosts Summer Leadership Camp For High School Students with Disabilities

Published: July 26, 2017

Last week, HDI hosted a Summer Leadership Experience Camp for high school students with disabilities. The camp, designed to prepare students for a successful transition to college, included presentations and activities to promote self-advocacy, self-determination, and leadership skills needed to succeed in college.HDI Hosts Summer Leadership Camp For High School Students with DisabilitiesRead More…



Man with Down syndrome working.

Bottom Dollars, a Rooted in Rights original documentary, screening on July 27

Published: July 20, 2017

The UK Human Development Institute invites you to a FREE screening of the film Bottom Dollars, a Rooted in Rights original documentary. This FREE and open to the public event will occur at The Center for Rural Development in Somerset, Kentucky and is presented by the UK-Human Development Institute, the Commonwealth Council on Developmental Disabilities, and Kentucky Protection & Advocacy (P&A).

This film exposes the exploitation of nearly 250,000 people with disabilities in the U.S. that are legally being paid less than the minimum wage. The documentary calls for the phase-out of the unfair practices of sub-minimum wages and sheltered workshops, and offers solutions for fair wages and inclusive employment.Bottom Dollars, a Rooted in Rights original documentary, screening on July 27Read More…



Photo of Stephanie Meredith

Remote Staff Spotlight: Stephanie Meredith

Published: July 11, 2017

By Bill Mazzoleni

Stephanie Meredith is HDI’s Information Services Director. She has worked at HDI for five years. What brought her to HDI is her and Harold Kleinert’s work on resources about Down syndrome for new and expectant parents. They met in 2007 at a conference about setting the research agenda for Down syndrome at the CDC, and he started reviewing material that Meredith created about Down syndrome. He was also working on the Brighter Tomorrow’s website. In 2012, they decided to come together and put their projects as one National Center for Prenatal and Postnatal Resources at HDI. Stephanie also works on the KentuckyWorks Grant employment project. This focuses on youth with significant intellectual disabilities transitioning from high school to work or post-secondary education.Remote Staff Spotlight: Stephanie MeredithRead More…



Lisa Dunkley accepting the award from the Burberrys.

Lisa Dunkley Named Winner of the 2017 Paul Kevin Burberry Award

Published: June 28, 2017

On June 16, Lisa Dunkley was named by the University of Kentucky’s Human Development Institute (HDI) as the winner of the prestigious 2017 Paul Kevin Burberry Award.

Lisa recently completed the Graduate Certificate in Developmental Disabilities program at the Human Development Institute (HDI) and is a doctoral student in Rehabilitation Counseling at the University of Kentucky. She currently has a Research Assistantship at HDI and has demonstrated a strong commitment to people with disabilities through an innovative HDI leadership project called Project Teach One Reach All (TORA), with the aim to promote disability awareness and inclusion of students living in residence halls on the UK campus.Lisa Dunkley Named Winner of the 2017 Paul Kevin Burberry AwardRead More…



Boys on bikes including boy with Down syndrome.

Updated “Understanding a Down Syndrome Diagnosis” book Available Now

Published: June 22, 2017

The nationally recommended book for new and expectant parents learning about Down syndrome, Understanding a Down Syndrome Diagnosis, from the Lettercase National Center for Prenatal and Postnatal Resources at the University of Kentucky’s Human Development Institute, has been recently updated with unprecedented collaboration from leading experts across the nation to improve the diagnosis experience for families. Updated “Understanding a Down Syndrome Diagnosis” book Available NowRead More…



UK Memorial Hall

Summer Leadership Training Camp 2017

Published: May 17, 2017

The Summer Leadership Experience is a wonderful opportunity for high school juniors and seniors with mild to moderate disabilities to get a glimpse of the college experience for a week this summer. This program is for students who want to transition to higher education. The Summer Leadership Experience is a day camp that will begin at 9 am on Monday, July 17th and will run through Friday, July 21st.Summer Leadership Training Camp 2017Read More…



US Capitol Building

Student Scholarships: Disability Policy Seminar

Published: May 9, 2017

Whittney Darnell and Rongxiu Wu, doctoral students in the University of Kentucky Human Development Institute (HDI) Graduate Certificate program in Developmental Disabilities, recently received HDI Student Scholarships to attend the Disability Policy Seminar in Washington, D.C.

The Disability Policy Seminar is an annual conference put on in collaboration by multiple national disability organizations including the Association for University Centers on Disabilities (AUCD). The conference focuses on educating participants about policy issues affecting people with intellectual and developmental disabilities.Student Scholarships: Disability Policy SeminarRead More…



Boy with Jacobsen syndrome

Research Brief Spring 2017

Published: April 13, 2017

Having a Son or Daughter with Jacobsen Syndrome/11q Deletion Syndrome: Perspectives of Parents

by Stephanie Meredith, Anthony Lobianco & Harold Kleinert

Jacobsen syndrome (JS) is a rare genetic condition that often causes intellectual disabilities and health issues and has recently been added to various cell-free DNA prenatal screening tests. This condition often includes multiple physical features, a blood disorder, serious congenital heart defects in about 56% of patients, and a range of intellectual disabilities (ID). Individuals may also experience mild to moderate impairment in expressive language, vision problems, digestive issues; and common infections of the upper respiratory system [Grossfeld, 2004]. However, because JS is relatively rare, psychosocial research has never been performed on this population. Correspondingly, a patient education resource about this condition has not yet been published that reflects “the medical and psychosocial implications of the diagnosis” identified as a priority in the ACMG guidelines when providing information to prospective parents learning about screening results.

Research Brief Spring 2017Read More…



HDI Announces Applications Open for Developmental Disabilities Graduate Certificate

Published:

Applications are now open for the University of Kentucky’s Human Development Institute Graduate Certificate in Developmental Disabilities. The purpose of this Graduate Certificate is to prepare students from a broad range of disciplines to play a leadership role in providing services and supports for people with developmental disabilities and their families. In addition to classroom learning, students will also have the opportunity to participate in a practicum and learn directly from individuals with developmental disabilities and their families.HDI Announces Applications Open for Developmental Disabilities Graduate CertificateRead More…



Spring Seminar: “Serving Those Who Served Us: Understanding Military Culture and Disability Awareness in College”

Published: March 24, 2017

Student veteran success within higher education is dependent in large part on higher education’s understanding of military culture. Since the gap appears to be at its largest on campuses nation-wide, it is imperative that we make the effort to better inform those who are involved in student success. While military experiences vary widely, all veterans regardless of their experience come back to a culture that views them differently simply because of that service. – Tony Dotson

Spring Seminar: “Serving Those Who Served Us: Understanding Military Culture and Disability Awareness in College”Read More…